Category Disability

Where’s Non-invasive prenatal testing heading?

Chris Kaposy considers the future trajectory of non-invasive prenatal testing and the implications of using this testing method to conduct prenatal whole genome sequencing.

Choice, not ‘Reflex’: Routine Prenatal Screening

Vardit Ravitsky warns that routine Non-invasive Prenatal Screening can undermine women’s reproductive autonomy and she calls for broad societal changes and policies that help promote individual choice.

Will SickKids “do anything” to raise funds?

Anne McGuire and Michael Orsini offer a critical analysis of how the business of selling health is influenced by popular images of illness and disability that circulate in the places and spaces where care should be the primary concern.

Gene Editing: Where Should We Draw the Line?

Françoise Baylis continues to advocate for broad societal consensus on the future of germline genome editing and sees the Parliamentary Assembly of the Council of Europe as an ally given their support of broad public engagement.

The Politics of “Mixed-model” Home Care

Mary Jean Hande and Christine Kelly advocate for a publicly funded home care service that is guided by the best practices and the experiences of the people on the frontlines of care, namely health care workers, patients, and their families.

Canada’s Prohibition on Altering the Human Genome

Françoise Baylis and Alana Cattapan defend the current prohibition in Canada on making genetic alterations that can be passed on to future generations.

Transferring Embryos with Genetic Anomalies

Jackie Leach Scully argues that respect for equality and diversity, and not just respect for the parental autonomy and the welfare of the future child, should inform policies governing the use of preimplantation genetic diagnosis.