Category Disability

The Politics of “Mixed-model” Home Care

Mary Jean Hande and Christine Kelly advocate for a publicly funded home care service that is guided by the best practices and the experiences of the people on the frontlines of care, namely health care workers, patients, and their families.

Canada’s Prohibition on Altering the Human Genome

Françoise Baylis and Alana Cattapan defend the current prohibition in Canada on making genetic alterations that can be passed on to future generations.

Transferring Embryos with Genetic Anomalies

Jackie Leach Scully argues that respect for equality and diversity, and not just respect for the parental autonomy and the welfare of the future child, should inform policies governing the use of preimplantation genetic diagnosis.

Blinded by the Promise of Stem Cell Treatments

Alan F. Cruess cautions against the use of unproven stem cell ‘treatments.’

Gene Therapy: A Threat to the Deaf Community?

Teresa Blankmeyer Burke considers the problematic nature of gene therapy research aimed at eliminating hereditary deafness.

Human germline genome editing: An ‘impressive’ sleight of hand?

Françoise Baylis wonders how it is that in 14 months (from December 2015 to February 2017), the U.S. National Academy of Sciences and the U.S. National Academy of Medicine have moved human germline genome editing out of the category ‘irresponsible’ and into the category ‘permissible.’

Lupron: Déjà Vu All Over Again

Alice Dreger raises concerns about a pervasive pattern of non-evidence based assumptions driving practices in pediatric endocrinology.