Category Paediatric

The M Case: Death Caused by Base Editing

Renzong Qiu tells the story of the death of a six-year-old girl, a research participant in a base-editing gene therapy trial in China, and argues that research participants’ interests should never be overridden by scientific or social interests.

Considerations of “Sharenting” a Child’s Cancer Story Online

Rachel Howard introduces the practice of “sharenting” and considers the ethical considerations of this practice within the pediatric oncology context, and the potential role of pediatric oncologists.

The Kimmel Suspension and Public Health Ethics

Chris Kaposy considers the most recent free speech violation by the Trump administration in light of conservative objections to pandemic-era efforts to limit harmful communication.

Intellectual Disabilities and Autism: Ethics and Practice

Andria Bianchi and Janet A. Vogt introduce their new book which investigates ethical issues in the lives of people with intellectual and developmental disabilities and autistic people in health care and in other social contexts.

Puberty Blockers for Gender Dysphoria and the Open Future Principle

Sarah Jorgensen and Céline Masson argue that delaying decisions about medical transition until a child has had the chance to grow and mature into an autonomous adult is most consistent with the open future principle.